No improvement, no side effects. ... “Value of Openness” Blog. This forms brown scales that may be spontaneously shed or may be removed by the patient. Furthermore on some days the skin around my lips would be red, swollen and itchy. I got my herpes symptoms after the first week I moved in. * Party. 250? 2. After about four weeks he just looked at my then quite crusty lip, shrugged and started to trim them with a small scissor. He said he knew exactly what it was: inflammation of the lip - cheilitis. I was very hesitant to try Protopic as I wrote in this. There have not been any significant improvements in the last couple of weeks. This is the most important purpose of the group. According to Wikipedia Pharmacopoeia is a "book containing directions for the identification of samples and the preparation of compound medicines, and published by the authority of a government or a medical or pharmaceutical society." steroid cream on my lips. I'm hesitant to Protopic for two reasons: first I'm not really up for a potentially worsened condition right now since I'm low on energy and have a alot of social activities planned for the comming weeks. This doctor also sent my file as a referral to the Karolinska Institutet skin department in Stockholm, to examine my peeling lip condition I had told her about. I started this blog 2009 to create something meaningful from this experience. is one from today. * Mouthwash. I apply a thin layer of cream on the affected areas on my lips two times a day (mornings and before going to bed). I try not get the lips wet (when I shower or swim) as this usually makes the skin peel more easily and makes the loose flakes turn white. Read more about that in the, As an experiment to attract more members to the, I have now made it secret. He listened to my puls and told me my liver was overheated. It is also published on. This is one of the drawbacks with a Facebook group: information - good or bad - is eventually lost or pushed out of sight, until it gets repeated a couple of day/months later. * My dentist also checked my fillings but could not find anything unusual about them. If the skin is loose somewhere it usually peels when I bring the cotton swab to that area or when I rub my lips against each other. The patient, as you did, had used many other medications before. It's not possible to say whether this was linked to the Protopic or not. However there is one documented case where Protopic have been a successful treatment (, "Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. The main purpose of the group is to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. I was so relieved I almost hugged her the next time I saw her. Maybe the results would have been different if I tried the exact formula, with the brazilian calendula (as you can read in the mail below brazilian calendula may have different properties than the european one). Exfoliative Cheilitis Cure. I discussed the pros and cons of a secret group in this. It is a swedish brand and is called "Munkens Bisalva". The term "cheilocandidiasis" describes exfoliative (flaking) lesions of the lips and the skin around the lips, and is caused by a superficial candidal infection due to chronic lip licking. What is exfoliative cheilitis? I have only used my. They get dry, the lower lip peel, the skin underneath has been a different variation of "raw" (from mild to very raw – no blod though). Exfoliative cheilitis • Presenting as continuous peeling of the lips. The skin flakes maybe have become a little thinner nowadays compared to how they were 6 months ago. The patients develop an exfoliative dermatitis with sharp margins that rims the upper and lower lips…often looking like a clown face as shown in the picture above and below. * Citric acid. So, stress is something that we are all exposed. Facebook. There are quite some articles online about this, just google "protopic" and "cancer". It usually heals up pretty in a day or two. Since the chinese doctor had trimmed my lips and I had started to use vaseline again my lips actually looked pretty decent. I have done about four this year and have never experiences any problems though. I got my herpes symptoms after the first week I moved in. I called my dentist, he wasn't available till Tuesday and they recommend that I go to the emergency room. Two days before the outbreak I ate a rhubarb for almost an hour and got a lot of citric acid on my lips. She told me to use. Exfoliative cheilitis is characterized as an inflammatory condition of the lips in which the skin of the lips become chronically inflamed, crusty, and sometimes fissured. I’ve been experiencing exfoliative cheilitis for over 15 years. 3. . You can fight it. You should try to clip the hanging skin in an effort to try not to damage the skin still attached. I switched the vaseline to a bees wax lip balm (less greasy) and applied it 2-4 times every day, and gently rubbed of any loose skin with a cotton swap every morning and evening. I will not go into details about the discussion I had with the doctor about how to proceed with an evaluation of the treatment, new tests, research etc. As I have written in another post I suffered from exfoliative cheilitis for 8 months. There’s a whole community with exfoliative cheilitis online (chapped lips) like myself, dealing with it for more than 20 years. Hi David, Before I begin I want to say I think you're truly a brave soul for writing about this annoyingly traumatic condition so openly, and even posting pictures of your trials. We have his files and some from other patients who had good results using Calendula. Just like the rest of you, I am only human :). So please take a couple of minutes to fill in your answers. I have not heard of anyone that was cured completely. A while ago I created a poll where I asked the members how old they were when their exfoliative cheilitis first appeared. I blog VERY occasionally nowadays. I also asked here about the images in their study being identical and that they looked digitally manipulated, if you open the two pictures in two different tabs in your internet browser and then flip quickly between them you will see that it is the exact same picture. I got some new mails about a month ago; she could now provide me with the specific formula used in their study. I'm off the Valtrex pills since the beginning of the year and have not noticed any change from that. This means fewer updates (not that I do that very often ;), and it will take longer for me to respond to the mails, comments and Facebook request. There is a bunch content - personal stories, pictures, videos, questions, answers, cheering, caring and a whole lot of emotions. • Mainly affects young adults <30 years with personality disorders. It is not easy to deal with Exfoliative Cheilitis since there is not a quick treatment. Generally I follow a diet that is a mix of the mediterranean diet, slow carb diet and the paleo diet: Root vegetables (sweet potatoes, potatoes etc), Alcohol (occasionally I like to kick my heels up sometimes but it rarely happens more than 4-5 times a year), Mindfulness practice: 10 - 40 minutes per day (body scan, focused breathing etc), Sun: I try to go outside for at least 15 minutes per day no matter the weather, A social life: Talking to/meeting family and friends on a daily basis, Engaging in stuff that is meaningful (to me) or interesting or just plain fun, I don't follow the above diet or lifestyle 100 % of the time. Contact me on: exfoliativecheilitis [at] gmail [dot] com What lips need in this situation is to hold onto every drop of moisture. That's pretty awesome. (I did the root canal operation about two months before I got my symptoms in 2003), without any results. If you want to connect with people with EC, consider joining the Facebook group. As I can remember, I had felt something was going on the day before. Since I'm currently doing a No Lip Balm Experiment and don't use any kind of moisturizer the skin on my lower lip still builds up into big yellow/white crusts which fall of every other week. However there is one documented case where Protopic have been a successful treatment ("Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. Basically she told me "we can't just do random test in order to find anomalies, and there is not enough people with your condition to initiate any research". This is an inspirational talk about self-image and outer appearance from a girl with a very rare syndrom that prevents her body from storing fat or building muscle. I stopped the mometasone because I read steroid creams can thin the skin. Other than that I focus on eating healthy, regular exercise, doing stuff that makes me happy, stress management, and getting good quality sleep. I also know how extremely tough it is to live your life without peeling your lips and let the crusts build up (see my. Meditation, walking in green areas, exercise... We can not forget that we must consider the person. My lower lip still turn white when in contact with water. The condition cause me to change the way I eat, drink, brush my teeth and wash myself among other things. The main purpose of the group is not necessarily to chat but to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. * Shortly after that I went to Wales to be a trainee for a company for five months (thanks to a scholarship). * Doctor #8 gave me the steroid creme Emovat 0,05%. * Between the first and third doctor, I had a meeting with the skin doctor at Karolinska Institutet skin department. I have not experienced any side effects. Life is in our hands. I have recieved the analysis result from the biopsy I did earlier this summer: it did not show anything significant/new except a general inflammation of the skin, i.e. * I also visited a dermatologist. Her story reminds me of the question I was forced to ask myself time and time again during the first couple of years when the EC was really bad and I felt like a monster: How do I define myself? We know that our support is part of the treatment too. He also motivated me to stay positive and not to live with it psychologically (asked me to stop thinking about it all the time). I hosted a party with a friend two weeks prior to the symptoms, and shared my glass with many of the attendees. Chronic Lip Licking is often seen in children and is also referred to as Exfoliative Cheilitis, or Cheilitis Exfoliativa.. Here is the list: metronidazole tablets 200 mg (one tablet three times a day for two weeks) + Daktarin oral gel, Erythromycin 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel + Corsodyl mouth wash, and finally Trimethoprim 200mg (one tablet two times a day for two weeks) + no dairy products. at my local hospital: dental materials, food (mostly fruits and greens) and food additives. Lower lip peels on a daily basis. It made all of the crusts come off really easy. Human touch boost the immune system, maybe that is why my lips were so healthy during 2006-2009? Less hugs and kisses (since I broke up with my boyfriend). * I removed my latest root canal filling (I did the root canal operation about two months before I got my symptoms in 2003), without any results. Some internal hormonal imbalance is the real cause behind this recurrent peeling of skin. 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